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Publications
- "Missing Genetic Pieces: Strategies for Living with VCFS" (USA Website)
- "VCFS - Footprints of Hope." by Raymond Tanner (Australian Website )
- "Educating Children With VCFS" by Donna Cutler - Landsman also available archive versions of Donna's webcasts click here
ABOUT THE BOOK
EDUCATING CHILDREN WITH VCFS
Velo-cardio-facial-syndrome
is a relatively new syndrome — the genetic test to determine
if a child
has it has only been available since 1994. There are currently no books
available to address the educational needs of this population, yet
virtually 100% of children with Velo-cardio-facial-syndrome need
special educational programming. This new book effectively blends the
thoughtful research that has transpired within the past 10 years with
practical and current educational strategies to better meet the needs
of children with VCFS and other developmental disabilities. To first
address the scientific information that is needed to understand the
syndrome and the implications of current research, expert contributors
present the results of studies involving brain abnormalities,
language/learning profiles, psychiatric/behavioral difficulties. These
valuable chapters are written in a reader-friendly manner to help
parents, professionals, and teachers gain useful and necessary
comprehension of the unique characteristics of the VCFS population.
The second part of the book is a practical guide to educating a child with VCFS from birth through adulthood. Divided into the various stages of development from preschool to adulthood, it includes information regarding the necessary tests special education teams should run, typical difficulties associated with learning, changes that occur with ability as the child matures (drop in IQ scores and increased learning challenges), as well as behavioral problems in the school setting. Each section includes discussions of the learning challenges and accommodations that can be used at school and at home during that stage of maturity. The authors also present meaningful advice on issues such as friendships, private vs. public school placement, job training, and other pertinent decisions that affect the VCFS child’s everyday life. A pioneer of its kind, this book is an essential resource for teachers, parents, physicians, and therapists of children with Velo-cardio-facial-syndrome.
The second part of the book is a practical guide to educating a child with VCFS from birth through adulthood. Divided into the various stages of development from preschool to adulthood, it includes information regarding the necessary tests special education teams should run, typical difficulties associated with learning, changes that occur with ability as the child matures (drop in IQ scores and increased learning challenges), as well as behavioral problems in the school setting. Each section includes discussions of the learning challenges and accommodations that can be used at school and at home during that stage of maturity. The authors also present meaningful advice on issues such as friendships, private vs. public school placement, job training, and other pertinent decisions that affect the VCFS child’s everyday life. A pioneer of its kind, this book is an essential resource for teachers, parents, physicians, and therapists of children with Velo-cardio-facial-syndrome.
