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The VCFS and 22q11 Foundation supports families and persons affected by VCFS or Deletion 22q11.

Informative Websites, Facts Sheets, Parents Guide, Family Assistance and Medical schemes

Below is a list of useful website links for information on benefits you may be eligible for, programs that can assist as well as information sheets on VCFS. They have been divided up into sections to make it easier for you.

Parents Guides and Facts Sheets 

• Click Here to download the Parents Guide

• Click Here to download the Introduction to VCFS 22q11.2 DS for Teachers and Carers

• Click here to download the Specialist Fact sheet (with definitions)

• Click here to download the Specialist Fact sheet (without definitions)

• Click here for how to guides for children with genetic disorders

 Government forms and websites

• Click Here for Carers Allowance and Carers Payment Information and forms (Family Assistance - Centrelink Australia)

• Click here for the Cleft Palate Scheme (Medicare Australia) 

• Click here for the EPC Dental Care Grants (Department of Health and Ageing)

• Click here for Dental Care Services under Medicare for people with chronic and complex conditions (Department of Health and Ageing)

• Click here for Information about Mental Health Care Plan (Department of Health and Ageing)

• Click here for the Family Assistance Website (Family Assistance) 

• Click here for information on Transition to School for children with Special Needs (Department Education)

• Click here for information on Transition From School (Department of Education Northern Territory)

• Click here for information on special exam provisions (NSW) 

 Educational Videos

 Click the above image to go to the M.I.N.D institute 20 minute video presentation about VCFS - an introduction to Medical Issues

Conference Presentations

VCFS 22q11 Conference Sydney 28th August 2011

Below are a list of presentations from our VCFS 22q11 Conference at Childrens Hospital Westmead. Click the title of the presentation to download.

• Association of Genetic Support Australasia - Laurie Taylor

• UC Davis MIND Inistitute (CABIL) Presentations 

Including: - Integrating Cognition, Emotion & Psychiatry for Treatment in 22q11.2DS
Tony J. Simon, Ph.D
- Sources and Measures of Stress & Anxiety in Children with 22q11.2DS
Elliott A. Beaton, Ph.D., Post-Doctoral Scholar
- Anxiety in Children with 22q11.2DS and its Effect on Functioning
Kathy Angkustsiri, M.D., Behavioral Pediatrician
There are also other presentations on this link from the MIND inistitute family conference day April 2011

• Dr Linda Campbell - recent research

• Madeleine Randell - Attitudes to Sexuality

• Lisa Phillips (M Clin Psych student) -"How do young women with Velo-cardio-facial syndrome view their personal relationships, sexuality and parenthood?"

• Emma Gallagher (Prof Doc Clin Psych student)- Depressive symptoms in adolescents with velocardiofacial syndrome as they transition into emerging adulthood"

• Brooke Sinderberry - (PhD candidate)- Optimising Care for Children with VCFS 22q11.2DS

• Neil Nicoll – Behavioural Psychologist -  Social Skills Enhancement

• Maria Kamper - President VCFS 22q11 Foundation Report 2011 

• Maria Kamper - VCFSEF 18th Scientific Conference (overview) plus review of all presentations attended 

• Same Name Campaign - A Presentation about the International 22q Foundation Same Name Campaign

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