Latest News
2009 Walk for Awareness
The opening of the 2009 Walk for Awareness. Mayor Tony Issa cuts the ribbon
The new VCFS Brochure is here.
New VCFS 22q11 Website Launched!
Thursday 25 Feb 2010 - our new Fresh Look website went LIVE!
The VCFS and 22q11 Foundation Inc.
The Velo-Cardio-Facial Syndrome and 22q11 Foundation is a registered charity (INC 9875404). We have DGR Status and all donations of $2 or more are tax deductible.
The VCFS and 22q11 Foundation are a group that consists of individuals with VCFS, parents, grandparents, siblings and carers of individuals with VCFS and professionals.
The foundation was founded by the late Dr Tony Lipson of the Children’s Hospital Westmead, NSW. Dr Lipson helped parents establish the first support group in the world for individuals with Velo Cardio Facial Syndrome. The foundation has been run for many years by countless volunteers who have given their time to help other families also walking this same path.
The VCFS and 22q11 Foundation objectives are:
- To raise awareness of VCFS
- To provide information and support to families affected by the deletion and to provide a contact register enabling families of children with similar symptoms to contact each other.
- Diseminate information and provide support to individuals with VCFS and their families/carers.
- Promote and support education programs and the development of new programs that will enhance the intellectual and social development of individuals with VCFS which will enable them to achieve their maximum potential in the community.
- Provide information via a quarterly magazine to all members of the foundation.
The VCFS and 22q11 Foundation has:
- As a registered charity we raised money for awareness campaigns and will continue to do so in the future
- Produced an 8 page booklet for the public and doctors that has been distributed throughout Australia
- Had VCFS Community Service Announcements put on TV in 2008, 2009 & 2010
- Sent Financial members awareness week packages with cards, balloons etc… for awareness campaigns during our awareness week
- Supported those affected by VCFS through our VCFS website and Online Support Network.
- Held annual conferences which are free to members about VCFS for the past 5 years
- Had the VCFS Awareness Week approved by the State and Federal Government
- Produced a range of VCFS Merchandise which is for sale through our website, again to raise awareness
- Held the 1st ever VCFS “Walk for Awareness” with more than 300 people attending
- Produced a quarterly magazine which is distributed to members
