 |
|
| Home | About Us | What is VCFS? | Contact Us |
| Fact Sheets |
| Publications |
| What's On |
| Supporting the Foundation |
| Membership |
| Links |
| Research |
| Parents Forum |
| News |
| Fun Stuff |
About
Us
The Velo-Cardio-Facial Syndrome Foundation of New South Wales is a registered charity (INC 9875404). We have DGR Status and all donations of $2 or more are tax deductible.
VCFSFNSW is a group that consists of individuals with VCFS, parents, grandparents, siblings and carers of individuals with VCFS and professionals.
The foundation was founded by the late Dr Tony Lipson of the Children’s Hospital Westmead, NSW. Dr Lipson helped parents establish the first support group in the world for individuals with Velo Cardio Facial Syndrome. The foundation has been run for many years by countless volunteers who have given their time to help other families also walking this same path. .
The aim of the VCFSNSW foundation is to provide information and support to families affected by the deletion and to provide a contact register enabling families of children with similar symptoms to contact each other
The VCFS foundation objectives are:
Raise awareness of VCFS.
Disseminate information and provide support to individuals with VCFS and their families/carers
Promote and support education programs and the development of new programs that will enhance the intellectual and social development of individuals with VCFS which will enable them to achieve their maximum potential in the community.
Provide information via a quarterly magazine to all members of the foundation.
Watch the Quinn Bradlee (VCFS Sufferer) documentary online click here
