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VCFS
"WALK FOR AWARENESS"
30TH AUGUST 09, 11am
Parramatta Park
Proudly Supported
by
www.storageking.com.au
contact
secretary@vcfsfa.org.au
Register by using the attached form
Printable Registration Form click here
or
Register and Pay online below
"WALK FOR AWARENESS"
30TH AUGUST 09, 11am
Parramatta Park
Proudly Supported
by
www.storageking.com.au
contact
secretary@vcfsfa.org.au
Register by using the attached form
Printable Registration Form click here
or
Register and Pay online below
The
VCFS and 22q11 Foundation supports families and
persons affected by VCFS or
deletion 22q11
VCFS AWARENESS WEEK
24th - 30th August 09
Click here for information
for Conference Registration Click Here
VCFS Community Service Announcement (Click Here)
Velo-cardio-facial
syndrome (VCFS) is a genetic syndrome. It
is the result of a submicroscopic deletion on the long arm of
Chromosome 22 in the “q11” region- deletion 22q11.VCFS AWARENESS WEEK
24th - 30th August 09
Click here for information
for Conference Registration Click Here
VCFS Community Service Announcement (Click Here)
- VCFS affects approx. 1 in 2000 - 3000 persons making it the second most prevalent genetic syndrome after Down syndrome
- VCFS is the most common genetic syndrome associated with cleft palates
- VCFS is the second most common genetic syndrome associated with congenital heart defects
- 99% of the VCFS population will have a learning difficulty or disability
- 30% of the VCFS population will develop a mental illness
- VCFS has more than 180 annomolies associated with it
- The name velo cardio facial syndrome comes from the Latin words "velum" meaning palate, "cardio" meaning heart and "facies" having to do with the face.
- Deletion 22q11
- DiGeorge Syndrome (DGS)
- Shprintzen Syndrome
- CATCH 22
- Conotruncal anomaly face syndrome
- Cayler cardiofacial syndrome.
For more information click here
The VCFS
Foundation of
NSW Committee 2008
at the "Making the Puzzle Easier Dinner - Sydney NSW
left to right: Leanne Tye, Melinda Woods, Maria Kamper, Slade Jensen, Lucy Jackson, Allison Allo,Louise Nade, Mary and Chris Thorley
photo courtesy Israel Smith Photographers
If you are affected or know someone affected by VCFS you should consider joining our support group. For $20 per year you will receive our quarterly magazine, a contact list of other members also affected and an information pack. See our membership page for details.
at the "Making the Puzzle Easier Dinner - Sydney NSW
left to right: Leanne Tye, Melinda Woods, Maria Kamper, Slade Jensen, Lucy Jackson, Allison Allo,Louise Nade, Mary and Chris Thorley
photo courtesy Israel Smith Photographers
When
a child's
health problems are puzzling......
A missing piece of
genetic material on
chromosome 22 (deletion 22q11)
may be the clue.
A missing piece of
genetic material on
chromosome 22 (deletion 22q11)
may be the clue.
If you are affected or know someone affected by VCFS you should consider joining our support group. For $20 per year you will receive our quarterly magazine, a contact list of other members also affected and an information pack. See our membership page for details.
To make a donation using our donation form
Click Here
or
To make a donation using Pay Pal click the link below
Click here for
PDF Brochure
