Latest News
Pink and Blue Ball
22nd May, 2010Cromer Golf Club NSW
MC - Tracy Mann, Logie winner
Special Guest - Lisa...
Latest News
2009 Walk for Awareness
The opening of the 2009 Walk for Awareness. Mayor Tony Issa cuts the ribbon
The new VCFS Brochure is here.
New book out now "Educating Children with VCFS"
By Donna Cutler-Landsman.
The VCFS and 22q11 Foundation supports families and persons affected by VCFS or Deletion 22q11
Velo-cardio-facial syndrome (VCFS) is a genetic syndrome. It is the result of a submicroscopic deletion on the long arm of Chromosome 22 in the “q11” region- deletion 22q11.
- VCFS affects approx. 1 in 2000 - 3000 persons making it the second most prevalent genetic syndrome after Down syndrome
- VCFS is the most common genetic syndrome associated with cleft palates
- VCFS is the second most common genetic syndrome associated with congenital heart defects
- 99% of the VCFS population will have a learning difficulty or disability
- 30% of the VCFS population will develop a mental illness
- VCFS has more than 180 annomolies associated with it
- The name velo cardio facial syndrome comes from the Latin words "velum" meaning palate, "cardio" meaning heart and "facies" having to do with the face.
VCFS is also known as:
- Deletion 22q11
- DiGeorge Syndrome (DGS)
- Shprintzen Syndrome
- CATCH 22
- Conotruncal anomaly face syndrome
- Cayler cardiofacial syndrome.
When a child's health problems are puzzling......
A missing piece of genetic material on chromosome 22 (deletion 22q11) may be the clue.
- VCFS World Wide click here
- VCFS Disclaimer 2010 click here
Pink and Blue Ball 2010
Saturday 22nd May, 2010, 7.30pm
Cromer Golf Club, Cromer Road, Cromer NSWPink & Blue, no ball gowns required!
Register your interest
secretary@vcfsfa.org.auPay here via Pay Pal or download the attached form. Pink and blue Ball invitation
$65 per person (Remember to include the names of guests in the comments section)
