VCFS Foundation of NSW logo
VCFS & 22q11 Foundation Inc
Supporting those affected by deletion 22q11
Registered Charity CFN 13849
ABN 22 379 450 116
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VCFS
"WALK FOR AWARENESS"

30TH AUGUST 09, 11am
Parramatta Park

Proudly Supported
by

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www.storageking.com.au


contact
 secretary@vcfsfa.org.au

Register by using the attached form
Printable Registration Form click here

or
Register and Pay online below


registration
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The VCFS  and 22q11 Foundation supports families and persons affected by VCFS or deletion 22q11

VCFS AWARENESS WEEK
24th - 30th August 09
Click here for information
for Conference Registration Click Here

VCFS Community Service Announcement (Click Here)

Velo-cardio-facial syndrome (VCFS) is a genetic syndrome.  It is the result of a submicroscopic deletion on the long arm of Chromosome 22 in the “q11” region- deletion 22q11.

  • VCFS affects approx. 1 in 2000 - 3000 persons making it the second most prevalent genetic syndrome after Down syndrome
  • VCFS is the most common genetic syndrome associated with cleft palates
  • VCFS is the second most common genetic syndrome associated with congenital heart defects
  • 99% of the VCFS population will have a learning difficulty or disability
  • 30% of the VCFS population will develop a mental illness
  • VCFS has more than 180 annomolies associated with it
  • The name velo cardio facial syndrome comes from the Latin words "velum" meaning palate, "cardio" meaning heart and "facies" having to do with the face.
VCFS is also known as:
  • Deletion 22q11
  • DiGeorge Syndrome (DGS)
  • Shprintzen Syndrome
  • CATCH 22
  • Conotruncal anomaly face syndrome
  • Cayler cardiofacial syndrome.
For more information click here
commitee
The VCFS Foundation of NSW Committee 2008
at the "Making the Puzzle Easier Dinner - Sydney NSW
 left to right: Leanne Tye, Melinda Woods, Maria Kamper, Slade Jensen, Lucy Jackson, Allison Allo,Louise Nade, Mary and Chris Thorley
photo courtesy Israel Smith Photographers

When a child's health problems are puzzling......

A missing piece of
genetic material on
chromosome 22 (deletion 22q11)
may be the clue.



If you are affected or know someone affected by VCFS you should consider joining our support group.  For $20 per year you will receive our quarterly magazine, a contact list of other members also affected and an information pack. See our membership page for details.







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PDF Brochure

brochure


Click here
for
parents guide

puzzle